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Crohn's Disease

Crohn's disease is a type of inflammatory bowel disease (IBD) that may affect any part of the gastrointestinal tract. Signs and symptoms often include abdominal pain, diarrhea, fever, and weight loss, and possible bowel obstruction.  Other complications may occur outside the gastrointestinal tract and include anemia, skin rashes, arthritis, and tiredness.  Crohn's disease is caused by a combination of environmental, immune and bacterial factors in genetically susceptible individuals. It results in a chronic inflammatory disorder, in which the body's immune system attacks the gastrointestinal tract possibly directed at microbial antigens.

Crohns Disease Testimonial

May 5, 2016

1 Minute, 59 Seconds

I Have Crohn's Disease Story

October 29, 2016

8 Minutes, 16 Seconds

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Hemophilia

Hemophiliac Patient: Alex

October 14, 2015

2 Minutes, 13 Seconds

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Acute Lymphoblastic Leukemia (ALL)

A Childhood Cancer Story

May 28, 2016

2 Minutes, 20 Seconds

All: Erasing The Survival Gap

September 17, 2015

4 Minutes, 54 Seconds

Avery's Story: Acute Lymphoblastic Leukemia

September 18, 2015

5 Minutes, 16 Seconds

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Chronic Kidney Disease

Patient's Story: Living With Chronic Kidney Disease

October 30, 2015

4 Minutes, 39 Seconds

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Diabetes

Diabetes And Complications - One Patient's Story

October 21, 2015

4 Minutes, 51 Seconds

Managing your Type 1 Diabetes

November 24, 2015

2 Minutes, 22 Seconds

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Atypical Hemolytic Uremic Syndrome (aHUS)

Ethan Ahus

September 17, 2015

4 Minutes, 28 Seconds

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Rare Diseases

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Total Videos:  12

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Emma's Hypophosphatasia

  • September 17, 2015
  • 2 Minutes, 34 Seconds
  • 2:34  |  Sep. 17, 2015

My daughter has a genetic disorder called Hypophosphatasia. I am part of a HPP community and we are trying to get the word out about the disorder. Thanks

Ethan Ahus

  • September 17, 2015
  • 4 Minutes, 28 Seconds
  • 4:28  |  Sep. 17, 2015

Ethan is an amazing boy who was diagnosed earlier this year with an extremely rare blood disease- Atypical HUS. Less than 500 people in the US have this disease. Not once has he complained or felt sorry for himself. He truly is a strong warrior! Follow his journey at www.ethanjkeona.blogspot.com or on facebook under ...

Gaucher Type 1, 2, And 3 - A Parent Explains The Differences

  • September 17, 2015
  • 2 Minutes, 35 Seconds
  • 2:35  |  Sep. 17, 2015

We recently had the pleasure of talking to Theresa Sweeny, co-founder to GT23 Foundation, a non--profit organization to help promote awareness and research for Gaucher's Type 2 and 3. At present, most awareness and most treatment for Gaucher's disease is focused on Gaucher's Type 1. It now has several treatment options....

Hpp Video: Adolescent Patient

  • September 17, 2015
  • 4 Minutes, 23 Seconds
  • 4:23  |  Sep. 17, 2015

Hypermobility - Ehlers-danlos Syndrome

  • October 1, 2015
  • 2 Minutes, 44 Seconds
  • 2:44  |  Oct. 1, 2015

I recorded this video so I could properly show people what I mean when I say I have hypermobile joints. I didn't include everything I can do, but I think I documented the main ones. For the record, I have a diagnosis of Ehlers-Danlos Syndrome, hypermobile type.

Living with Gaucher's

  • October 23, 2015
  • 7 Minutes, 17 Seconds
  • 7:17  |  Oct. 23, 2015

Ms.Pontello is a marriage and family therapist living with Type 1 Gaucher's Disease. Hear her inspiring story from when she was diagnosed with Gaucher's at the age of six through her journey undergoing treatment and living a full life.

Living With Short Gut Syndrome: Jenny's Story

  • September 17, 2015
  • 4 Minutes, 5 Seconds
  • 4:05  |  Sep. 17, 2015

Learn more: http://www.uwhealth.org/31464 Jenny Raduenz was born with her intestines on the outside of her body, and has undergone many surgeries during her 24 years. She has short gut syndrome - her small intestine is just 180 centimeters long; the typical length is 22 or 23 feet. Raduenz calls the UW Health Pediatric...

My Life Living With Hypophosphatasia

  • September 17, 2015
  • 18 Minutes, 44 Seconds
  • 18:44  |  Sep. 17, 2015

Hypophosphatasia

Our Little Miracle- Gideon's Journey With Hpp

  • September 17, 2015
  • 3 Minutes, 49 Seconds
  • 3:49  |  Sep. 17, 2015

Gideon's journey with Hypophosphatasia from birth to his 1st birthday

Self-management - Paroxysmal Nocturnal Haemoglobinuria

  • September 17, 2015
  • 14 Minutes, 18 Seconds
  • 14:18  |  Sep. 17, 2015

Lesley Loeliger shares her story of how she manages PNH; a rare genetic condition that affects 1 - 5 people per million. www.geneticalliance.org.uk

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